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Wednesday, September 10, 2008 A Natural Medicine Treatment for Primary Liver Cancer
I have an update to all. This is the post I made on the GK discussion group on July 19th of this year: The following is the protocol that I am currently on. I will post as to my progress and welcome anyone's feed back. I am battling to stay alive. I have been diagnosed with Primary liver cancer. I have a number of lesions in my liver, nowhere else. I am currently seeing an oncologist and taking a medication called Nexavar for Primary Liver Cancer (HCC) and have been on it for about a month. I will have MRI in Aug. to see about progress.. Glutamine 50g a day Ok. that was then. Now for the update. Please realize that I had primary liver cancer (HCC) since Jan. of '08 and the cancer was allowed to spread from Jan. until mid-June when I started on Dr. Martin's protocol and a pharmaceutical called Nexavar (a multi kinase inhibitor). So, when I was checked at the end of Aug. the MRI showed that lesions had grown in size and cancer had progressed but had not metatastized. I also had blood work which showed normal liver function. The oncologist told me that it could be the medication was not working and that she was suprised liver function was still normal but to expect the worst. They were going to check me with CT-scan in 6 weeks and do labs in 2 weeks. I called Dr. Martin and told him of the setback. He proposed that I up the ante. The following is the protocol I have been doing since end of August: Glutamine 70g a day ( I weigh 190 lbs.) In a few days I am going to add: Mebendazole (the worm pill) 100 mg 2x a day for 5 days and then see how I feel. And discuss with Dr. Martin. Got the labwork back yesterday (Sept.9) and oncologist said to me..."I am really quite suprised, your liver function is perfectly normal! And your liver is normal size, soft, as normal as mine. Maybe something is working because clinically you are stable. This is a good deal. I am going to look into clinical trials for you at M.D. Anderson and Baylor because as long as you are clinically stable you have for options for treatment." So. I went from you don't have long to live at end of Aug. to "maybe something is working'? this past week. I, of course, don't know what is going on but can tell you that I have very good energy during the day, I sleep well at night , eat and breathe normally. This is a big deal. I am prepared to die but at the same time I will take any bit of light that comes my way and dance with it. Will up date Dr. Martin in Oct. when I have my Cat-Scan . Hope this helps someone. I know one thing, Dr. Martin's protocol has caused me no adverse effects, there is a lot of good science behind everything he is recommending. To me, it is a no brainer. One more thing: In August after my MRI my oncologist who knew I was juicing every morning said "STOP JUICING". Dr. Martin has over and over said 'NO ANTIOXIDANTS!" Onward through the fog...as we used to say in my college days. Nothing has changed really. I will keep all you good people in my thoughts and prayers. Larry B.
------------------------ a more recent (January 2009) summary of the protocol: Here is a list of supplements I have taken in addition to Nexavar (a multi kinase inhibitor and the only drug currently being prescribed by oncologist for non-resectable liver cancer): Glutamine 50g a day dissolved in H2O Vitamin B1 1g a day Zinc Zulfate 50mg a day Liquid dissolved in H2O Intensive acupunture with Chinese MD 2 x a week for 3 months. This is the latest protocol since having been put on Coumadin since Oct. '08: Glutamine 60g a day ( I weigh 185 lbs.) Vitamin B1 1 g + 500 mg a day And added: Sho saiko To is a botanical mixture made in Japan for Hepatitis C and Liver Cancer. It is currently undergoing clinical trials at Sloan-Kettering in New York. It consists of Bupleurium root, Ginseng, Licorice, Ginger, Jujube, Scutelleria and Pinnellia Tuber. I was diagnosed with one lesion 3.5 cm in Jan '08. Put on the liver transplant list March of '08. Taken off list May '08 because lesion was 5+cm and multifocal lesions appeared. I was given 6 months to live. Began course of Nexavar and supplements in mid June '08. Ct and MRI in Aug. showed cancer was spreading and lesions all had increased in size, still Primary Liver Cancer. Oct. '08 another CT showed remarkably enough that all lesions had decreased in size and some had dissapeared. Downstaging with Primary liver cancer is not unheard of but it is very, very rare. I am in the less than 1 percentile group. I did one month (10ml) of Methyl Jasmonate inhaled with a Vicks personal inhaler post Oct. results. Have not had any testing since but blood work showed Alpha FEta proteing tumor marker down from 55 to about 16 in Dec. and liver function is perfectly normal.
Email, 5 February 2009
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